Saturday, 26 February 2011

Home at last.

Thank you so much for all the positive and wonderfully supportive comments, emails and cards that you have sent. They are really helping both me and my family get through this.

I came on home late on Wednesday afternoon, 9 days after the operation which lasted most of the day on Monday 14th. I spent two nights in Intensive Care with a tracheotomy to help me breathe and tubes all over the place - mainly because an operation in the mouth causes so much swelling they have to assume that you'll need help with everything afterwards. Most of the time in Intensive Care thankfully passed in a bit of a blur, but my strongest memory is of the ward sister saying that there was no reason why Jamie shouldn't be brought into my room for a few minutes for me to hold him - I will always be greatful to her for that. In fact, I'm so grateful to all of the consultants, doctors and nurses who have looked after me, and will continue to look after me, probably for several more years. They have been wonderful, caring for my family as well as me.

So, I'm home.

I'm battered, bruised, scarred and stitched up all over the place, and most of the day is spent in bed resting. I'm having to learning to eat and speak properly again, but they're really pleased with how I'm doing. The average stay in hospital after this type of operation is 10 days - T says they let me out a day early not because I was doing so well, but because they wanted to get rid of him! I seem to have a little more energy each day, but I'm having to be careful not to take things too fast. I also seem to be able to eat and speak a little bit better each day too. At the moment it's mainly pureed and other soft foods, and I'm starting to get bored of them! It's going to take a while, but I know I'm going to get there, and I am so grateful to be home with my boys again.

Tuesday, 15 February 2011

Mummy's had her surgery

Hello, it's Jamie, well actually it's my Daddy writing cause I can't reach the keyboard, I just wanted to give an update on how my Mummy is.

The surgery went well and everyone was happy with how Mummy has been since coming out of Theatre, she is now in Incentive Care for a day or two just to ensure she has 4* treatment and her own Nurse for a while.  I went to see her today and we had a cuddle and she was smiling, joking and then frowning at Daddy - but the frowning happens a lot anyway!!!

Mummy does have some tubes coming out of her but the Doktor said it was to help make her better so thats OK.  There was a funny green button which Mummy could press, but no one else could, which made her feel a little better, I think it was called More Feen. Anyway the plan is for Mummy to be out on a proper ward, where I can visit lots, very soon. I can't wait, all this bottle feeding is OK but you can't beat the real thing.

Got to go, will post again if I am allowed to but maybe Mummy will be up for making her own paste!!!

Jamie -  Aged 1 month, 1 week and 2 days.

Sunday, 13 February 2011

And now for the not-so-good news....

As I said below, there is another reason why time seems to have gone really quickly in our household recently. We've been having a rollercoaster ride at the moment - joy at finally having two beautiful boys, and, well, tears as well.

I haven't been very well recently, and this has been the main reason I haven't post on here for a few weeks. I didn't really feel able to post anything else until I was ready to tell you what else was going on in our lives. A few weeks ago, when Jamie was 6 days old, I was diagnosed with a thankfully treatable, curable form of tongue cancer. I had had mouth ulcers for years, had a biopsy on them (which showed that they were just ulcers, most likely caused by stress) and treatment for them 6 years ago, and they almost disappeared once I left teaching fulltime. They flared up again late autumn, which I put down to the stress of the miscarriages. The dentist referred me back to the hospital, and the news wasn’t so good this time. I’ve had biopsies, CT scan, MRI scan etc etc, and will be having an operation to remove the tumour (which is mainly sitting on top of my tongue) tomorrow. I will have to stay in hospital for up to two weeks, but the good news is that the hospital are moving very quickly and the intention of the operation is to cure me, and Southampton General is a great hospital.  There may be some radiotherapy afterwards as they are tackling this with both belts and braces, to quote the consultant, to make doubly certain that the cure is complete. I will also probably have to have some speech therapy afterwards as well. As you can imagine, it’s all a shock, but the main reason that my consultant has a policy of getting things like this sorted as quickly as possible is to reduce the amount of time that people have to worry. My parents have come to stay while I’m in hospital to help T with the boys.  At least Jamie is too young to realise that anything unusual is going on and Ben is young enough that in another year he probably won’t remember any of this. Being away from them is going to be horrible though, but they will come and see me as much as possible. 

So, not the usual jolly news that you might expect to read on my blog, but this blog has always been about my life as well as about my jewellery, and I can't completely separate the two. I will be back soon, but in the meantime, prayers and positive thoughts for me and my family would be very much appreciated.

I will be back soon!


The last month has gone so quickly! Partly because of something that's been going on that I'll tell you about in a separate post in a little while, but obviously also because time does seem to go quickly when you have a new baby to care for!

Jamie is absolutely gorgeous! Ben is still besotted with him, especially when he sees someone he hasn't introduced Jamie to yet. He is so gentle with him. Jamie has just started smiling, although as you can see from this photo, yawning is a common occurance!

I have knitted a couple of things for him already, the vest top and booties he's wearing here and another vest top as well. Small projects are good at the moment!


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